3rd Course of Sutent

Steve started back on Sutent on Friday and as strange as it is to say it I was looking forward to it.


Steve is in so much pain at the moment with the tumours that it is making life really tough for Steve. The pain comes on when Steve sits down or lies down and as he is an active person it is only in the evening.

How awful that at the end of the day when the most of us look forward to relaxing, that Steve knows his pain is going to come back and with such intensity that you just cant get comfortable.

I have found an old lavender wheat bag, which I put in the microwave and heat up. The heat on the area where the pain is helps Steve but doesn't make the pain go away. We have increased the morphine but even these aren't taking the pain away.

Steve typically gets a couple of hours of sleep before the pain returns. He does his best to not wake me up but I'm a light sleeper and want to help him where I can.

Its awful to see Steve in so much pain and not be able to do very much to help him. I do my best with my magic hands to give him a massage and of course the wheat bag and the medication but apart from these things I just try and be there for him. I'm not at my best in the middle of the night but do my best.

It is very strange as during the day Steve is quite active and is slightly in pain but nothing like the pain he feels when he sits or lies down. People who see Steve during the day comment on how he looks okay and he does, to the point, that if you didn't know he had cancer you wouldn't be able to tell, unless that is you know him very well.

When we met Tom he did say to let him know if the pain continues after he starts taking Sutent, tonight is the 4th night and so if tonight is the same, then I will call Tom tomorrow.

I will update in the next few days regarding Steves pain. Lets just hope the Cancer pain goes away before the painful side effects of Sutent return! So he can have some time pain and side effect free.